Supporting Families Impacted by Huntington’s Disease

At Icon Accounting, one of our core values is to give back whenever we can. This month, we’re proud to highlight a charity: the Huntington’s Disease Association of Ireland (HDAI). We kindly encourage our contractor community to consider supporting the vital work this organisation does for individuals and families impacted by Huntington’s disease, both during this time of year and throughout the coming year.

Link to donation page: Huntington's Disease Association of Ireland - Donate

Find out more information - https://www.linkedin.com/company/huntingtons-disease-association-of-ireland

What is Huntington’s Disease?

Huntington’s disease (HD) is a rare hereditary condition that causes the gradual breakdown of nerve cells in specific parts of the brain. It is triggered by a faulty gene that produces a toxic protein, damaging the brain’s cells. Over time, HD impacts the body’s nervous system, affecting movement, learning, cognition, and emotions. Over the course of the illness, from 15  to 25 years on average, people living with HD will lose the ability to walk, talk, eat and manage their self-care. In addition, people experience thinking difficulties, and emotional and mental health changes. Each child of a parent with Huntington’s disease has a 50% chance of inheriting the faulty gene. Since the discovery of the HD gene in 1993, research has advanced significantly, leading to clinical trials aimed at developing therapies to halt or slow the disease’s progression.

The Human Impact of HD

Families affected by Huntington’s disease often experience generational trauma, witnessing one or more loved ones battle the illness over time. Children have to contend with being at risk themselves while watching their parent struggle with the disease. Many families find it difficult to talk openly about the disease due to a fear of genetic discrimination and of disclosing information about other family members. The disease poses significant challenges for the person affected but also for family care givers and other family members at risk.

Who is the Huntington’s Disease Association of Ireland (HDAI)?

Founded in 1985 by family members of those affected, the Huntington’s Disease Association of Ireland provides essential information and support to individuals and families navigating HD. HDAI also advocates for greater awareness among healthcare professionals and policymakers, working tirelessly to improve services and understanding of this complex condition.

How Can Donations Help?

Donations to HDAI help fund essential work, including:

• Family Support Services: Providing a dedicated Family Support Officer.
• Financial Wellbeing Services: Offering practical guidance and assistance.
• Advocacy and Signposting: Ensuring families access the services they need.
• Counselling and Support Meetings: Helping families navigate the emotional challenges of HD.
• Specialist Equipment: Supplying items like seating and other necessary aids.
• Assistance Fund: Supporting families with additional needs.

Join Us in Supporting HDAI

The Huntington’s Disease Association of Ireland offers a lifeline to those impacted by this devastating disease. At Icon Accounting, we are honoured to contribute to their efforts, and we encourage our contractor community to join us in supporting HDAI. Whether through a donation, raising awareness, or volunteering, your contribution can make a meaningful difference to individuals and families affected by Huntington’s disease.

Link to donate: Huntington's Disease Association of Ireland - Donate

Together, let’s help HDAI continue its vital mission to provide hope and support to those who need it most.